Action Duchenne: Working Towards a DMD-Free World

Based in London, England, Action Duchenne is a non-profit organization dedicated to raising awareness and finding a cure for Duchenne muscular dystrophy (DMD), a rare genetic disorder that involves muscle weakness and occurs primarily in boys. Founded in 2001, Action Duchenne prioritizes the funding of DMD research, as well as increases public awareness of the condition, campaigns to improve care services, and provides support and programs for people living with Duchenne. To date, the charity has generated £5 million for new DMD research alone.

Led by individuals and families affected by Duchenne muscular dystrophy, Action Duchenne takes a positive and proactive approach by working in partnership with other charities, families, government agencies, NHS and care organizations, academic and scientific groups, and biotech companies around the world. In addition, Action Duchenne organizes regional workshops, lobbies, and an annual international Duchenne research conference. Meanwhile, the charity's Decipha and Takin' Charge projects help to improve the educational attainment and quality of life for young people living with DMD.